Paul Wicks, PhD

R&D Director , PatientsLikeMe
Cambridge, Massachusetts, United States

Research field: Psychology - Cognitive Psychology
Amyotrophic Lateral Sclerosis (ALS), Parkinson's disease, neuropsychology, PET, MRI, pseudobulbar affect, compulsive behaviour, compulsive gambling, online communities, online research, Health 2.0

Publications

Journal Article (24)
- Paul Wicks, Vaughan Bell (2012) Letter to the Editor: Quality of mental health information on Wikipedia., 1. In Psychological medicine.
  http://www.ncbi.nlm.nih.gov/pubmed/22...
- André Maier, Teresa Holm, Paul Wicks et al. (2012) Online assessment of ALS functional rating scale compares well to in-clinic evaluation: A prospective trial.
  http://informahealthcare.com/doi/abs/...
- Paul Wicks, Dorothy L Keininger, Michael P Massagli et al. (2012) Perceived benefits of sharing health data between people with epilepsy on an online platform., 16-23. In Epilepsy & behavior : E&B 23 (1).
  http://dx.doi.org/10.1016/j.yebeh.201...
- P Wicks (2012) Reassessing received wisdom in ALS - pain is common when studied systematically., 531-2. In European journal of neurology : the official journal of the European Federation of Neurological Societies 19 (4).
  http://www.ncbi.nlm.nih.gov/pubmed/21...
- Paul Wicks, Timothy E Vaughan, Michael P Massagli et al. (2011) Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm, 411-414. In Nature Biotechnology 29 (5).
  http://dx.doi.org/10.1038/nbt.1837
- Paul Wicks (2011) Hypothesis: Higher prenatal testosterone predisposes ALS patients to improved athletic performance and manual professions.. In Amyotrophic lateral sclerosis : official publication of the World Federation of Neurology Research Group on Motor Neuron Diseases.
  http://informahealthcare.com/doi/abs/...
- M R Turner, P Wicks, C a Brownstein et al. (2010) Concordance between site of onset and limb dominance in amyotrophic lateral sclerosis.. In Journal of neurology, neurosurgery, and psychiatry.
  http://www.ncbi.nlm.nih.gov/pubmed/20...
  
  Download PDF (63.3 KB)
- Richard S Bedlack, Paul Wicks, James Heywood et al. (2010) Modifiable barriers to enrollment in American ALS research studies., 1-6. In Amyotrophic lateral sclerosis : official publication of the World Federation of Neurology Research Group on Motor Neuron Diseases.
  http://www.ncbi.nlm.nih.gov/pubmed/20...
  
  Download PDF (130.33 KB)
- L Taylor, P Wicks, P N Leigh et al. (2010) Prevalence of depression in amyotrophic lateral sclerosis and other motor disorders., 1047-53. In European journal of neurology : the official journal of the European Federation of Neurological Societies 17 (8).
  http://www.ncbi.nlm.nih.gov/pubmed/20...
  
  Download PDF (104.21 KB)
- Paul Wicks, Michael Massagli, Jeana Frost et al. (2010) Sharing health data for better outcomes on PatientsLikeMe., e19. In Journal of medical Internet research 12 (2).
  http://www.ncbi.nlm.nih.gov/pubmed/20...
  
  Download PDF (305.54 KB)
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Generic (2)
- Jeana Frost (2011) Patient-reported Outcomes as a Source of Evidence in Off-Label Prescribing: Analysis of Data From PatientsLikeMe.
  http://www.jmir.org/2011/1/e6/
- Paul Wicks (2011) Use of an Online Community to Develop Patient-Reported Outcome Instruments: The Multiple Sclerosis Treatment Adherence Questionnaire (MS-TAQ).
  http://www.jmir.org/2011/1/e12/
Web Page (1)
- No Title.
  http://www.future-science.com/doi/pdf...
  
  Download HTML (266 B)

Awards and Grants

Feb 2012

NESTA / The Observer's Britain's 50 New Radicals View website
Aug 2011

TR35 Humanitarian of the Year View website
Dec 2009

Inaugural Medicine 2.0 Award View website
Nov 2007

Honorable Mention, NHS Innovations London Award View website
Jun 2006

Best Member's Paper, British Neuropsychiatry Association
Jun 2005

Best Member's Paper, British Neuropsychiatry Association

Biographical Information

Paul Wicks is the director of research and development (R&D) at PatientsLikeMe. An internationally recognized expert in psychological aspects of neurodegenerative conditions, Dr. Wicks is responsible for shaping the scientific and medical validity of the online patient communities at PatientsLikeMe. As R&D director, he leads a team of experts charged with conducting scientific research that generates insights about the personal health data shared by patient members.

Under Dr. Wicks’ direction, the PatientsLikeMe R&D team has produced over a dozen peer-reviewed publications to date, including an innovative patient-led trial of lithium in ALS, a survey of pathological gambling in Parkinson's disease, and an extension of a gold-standard patient reported outcome measure; studies which have appeared in major scientific journals such as Nature Biotechnology, Movement Disorders and European Journal of Neurology. In addition to working with elite research organizations, including Johns Hopkins, Penn State, and Forbes-Norris Pacific ALS Centre, the R&D team also provides professional services to the company’s commercial partners.

Prior to joining PatientsLikeMe, Dr. Wicks worked directly with patients from around the world studying cognition in rare forms of ALS and psychological consequences of Parkinson’s disease. Those research findings have also been published in numerous peer-reviewed journals.

A frequent conference presenter on the power of personalized medicine in improving health outcomes, Dr. Wicks has twice won the British Neuropsychiatry Association prize for best speaker. He completed his Ph.D. thesis at King’s College London at the age of 24.