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Veiled Viral Marketing: Disseminating Information on Stigmatized Illnesses via Social Networking Sites

by Derek Hansen, Christianne Johnson
Proceedings of the 2nd ACM SIGHIT International Health Informatics Symposium (2012)

Abstract

Social networking sites such as Facebook and MySpace offer new ways of encouraging healthy behavior by leveraging existing social relationships, particularly among young adults. However, spreading information through social networks can be sensitive and problematic when the content relates to stigmatized illnesses. This paper proposes a novel strategy, Veiled Viral Marketing, which uses social networking sites to anonymously disseminate information about stigmatized illnesses to social networking friends. We describe the successes and failures of this approach based on an empirical study of a prototype Facebook App called FactCheck: HPV which was downloaded by over 1,022 users. We find interest in sending veiled invitations, though not as much interest as sending invitations from a known friend (1:2 ratio). However, we find that users are 5 times more likely to download the app if invited from a veiled friend compared to a known friend. We conclude with design suggestions related to Veiled Viral Marketing and dissemination of information on stigmatized illnesses more generally.

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