“I am trapped in my body”: a qualitative exploration of bodily experiences during brace treatment among adolescents with idiopathic scoliosis

Abstract

Purpose: Adolescent idiopathic scoliosis (AIS) is a spinal deformity that often requires long-term bracing to prevent the progression of spinal curvature. However, bracing impacts several aspects of adolescents’ lives. This study explores the bodily experiences of adolescents with AIS while receiving brace treatment. Methods: An exploratory qualitative study was conducted through in-depth interviews with 13 adolescents who had worn a brace for at least 6 months. The interviews explored adolescents’ experiences of scoliosis, and the brace’s impact on daily life. Data were analysed via reflexive thematic analysis informed by the phenomenological concept of embodiment. Results: Three main themes were identified in the analysis. First, the inhibited body, where adolescents described feeling restricted by the brace, which limiting physical activities and social interactions. Its rigidity hindered movement and participation. Second, the alienated body, where wearing a brace led to alienation and self-consciousness. Adolescents struggled with body image and feared negative feedback, and hid their brace under oversized clothing. Third, the disciplined body, where following bracing recommendations was difficult. Adolescents balanced required hours with social and school activities, often feeling guilt and frustration. Conclusions: A holistic approach is required to address the physical and emotional challenges of brace treatment and support adolescents’ overall well-being.