Objectives: Cystic Fibrosis Newborn Screening (CFNBS) enables prevention or delay nutritional and pulmonary decline. The goal of nutritional treatment is normal growth. Psychological condition of parents could influence adherence and thus nutritional status their children, particularly after diagnosis. Our aim was to evaluate the impact of emotional functioning of parents on nutritional status of children diagnosed through CF NBS. Methods: In Institute of Mother and Child, 44 children, in stable condition diagnosed through CFNBS and their parents, were assessed prospectively from September 2014 until December 2015. Body mass index (BMI) were calculated and expressed as standardized values based on national growth charts. To assess psychological functioning of parents The Hospital Anxiety and Depression Scale were performed. Results: The mean age of children (28 female) was 4 years. Standardized BMI were within the normal range in comparison to the reference population (mean -0.15+/-0.90; p = 0.28). 18% had BMI below -1 SD. Girls had significantly better nutritional status than boys. The elevated scores of anxiety were observed in 56% of parents with lower rate of depression (20%). Depression and anxiety symptoms were not significant predictors of BMI in step regression linear model. Important factor influencing nutritional status was sex of patients (b = -0.58; p = 0.042). Conclusion: Warsaw CF children diagnosed through CFNBS were characterized by normal nutritional status. Parents had more anxiety than depression symptoms. Emotional functioning of parents was not confirmed as a factor influencing children growth.
Mielus, M., Borawska-Kowalczyk, U., Zybert, K., Ołtarzewski, M., & Sands, D. (2016). 15 Emotional functioning of parents and its impact on nutritional status of children diagnosed through newborn screening – preliminary study. Journal of Cystic Fibrosis, 15, S55. https://doi.org/10.1016/s1569-1993(16)30255-7