Effect of Empowerment program for caregivers on Quality life of children with Cerebral palsy

Abstract

Penelitian ini bertujuan untuk mengeksplorasi bagaimana kekuatan keluarga pada keluarga yang anaknya menderita psikosis episode pertama. Penelitian ini melibatkan tiga keluarga dengan empat orang penderita psikosis episode pertama. Pengumpulan data dilakukan melalui wawancara, observasi dan penggunaan data rekam medis sebagai tambahan informasi yang dibutuhkan. Data yang didapatkan diolah secara fenomenologis, sehingga didapatkan tema-tema spesifik yang memberikan gambaran tentang kekuatan keluarga tersebut. Penerimaan positif keluarga yaitu keluarga menerima jika salah satu anggota keluarga (anak) mengalami psikosis, mereka selalu berusaha untuk memperoleh pengobatan dan dalam upaya pemulihan; kemampuan menyelesaikan permasalahan; komunikasi yang efektif dan terbuka; kedekatan dan kebersamaan dalam keluarga (berkumpul bersama); dukungan dari keluarga besar seperti terlibat dalam mencari pengobatan dan bantuan finansial; ketaatan dalam beribadah dan saling mendo’akan; sumber daya ekonomi dan status sosial yang dipandang lebih di masyarakat, merupakan karakteristik kekuatan keluarga yang berperan positif dalam mempercepat proses percarian pengobatan, maupun dalam masa pemulihan anaknya yang menderita psikosis episode pertama.Kata kunci: kekuatan keluarga, psikosis episode pertama, stigma, duration of untreated psychosis (DUP)This research aims to explore the family strengths within the family with first episode psychosis children. This involves four patients who have first episode psychosis within three families. The data collection was conducted through interview, observation, and also the usage of medical recorded data as additional information which was needed. The data were obtained from this research was processed phenomenological. Therefore, it could obtain specific themes which gave a description regarded family’s strength of themselves. Moreover, the positive acceptance from the family is very required, e.g the family receives if one member of the family (children) have psychosis, they (family) always try to obtain treatment and recovery effort; ability to solve problems; openness and effective communication; close relationship (gathering together with family); supports from the whole members of the family such as involved to seek medication and finantial support; devotion to worship and pray for each other; economical resources and well social status in the community are the strengths’characteristics of the family which have positive roles in helping patients to accelerate treatment’s seeking, and psychosis-recovery process for the children with first episode-psychosis.Keywords: family strengths, first episode psychosis, stigma, duration of untreated psychosis (DUP)