Validating care and treatment scenarios for measuring decisional conflict regarding future care preferences among older adults

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Abstract

Objective: Decisional conflict is used increasingly as an outcome measure in advance care planning (ACP) studies. When the Decisional Conflict Scale (DCS) is used in anticipatory decision-making contexts, the scale is typically tethered to hypothetical scenarios. This study reports preliminary validation data for hypothetical scenarios relating to life-sustaining treatments and care utilisation to inform their broader use in ACP studies. Methods: Three hypothetical scenarios were developed by a panel of multidisciplinary researchers, clinicians and community representatives. A convenience sample of 262 older adults were surveyed. Analyses investigated comprehensibility, missing data properties, sample norms, structural, convergent and discriminant validity. Results: Response characteristics suggested that two of the scenarios had adequate comprehensibility and response spread. Missing response rates were unrelated to demographic characteristics. Predicted associations between DCS scores and anxiety (r's =.31–.37, p

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Sinclair, C., Yeoh, L., Karusoo-Musumeci, A., Auret, K. A., Clayton, J. M., Hilgeman, M., … Comans, T. (2024). Validating care and treatment scenarios for measuring decisional conflict regarding future care preferences among older adults. Health Expectations, 27(2). https://doi.org/10.1111/hex.14010

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