Bringing patient data into the open

Abstract

Two groups have come to the conclusion that breakthroughs in translational medicine require collecting large-scale data on patients, including outcomes, and making those data available to translational researchers. Sage Bionetworks launched a portal through which users can contribute their own health and genomic data for research, and a report from the U.S. National Academy of Sciences is calling for the creation of a national infrastructure for accessing and analyzing open-source patient data.