Lived Experiences, Disease Management and Expectations in a Nursing-Led Psoriasis Unit: A Qualitative Study

Abstract

Background: Psoriasis is a chronic systemic disease affecting over 60 million people. While phototherapy is effective, its demanding schedule imposes a significant treatment burden. This study explores the lived experiences and healthcare expectations of patients in specialized nursing-led phototherapy units. Methods: A descriptive phenomenological study was conducted (2019–2022) with 72 participants at a Spanish tertiary hospital. Data from semi-structured interviews were analyzed using inductive thematic content analysis. Results: Nine subtopics emerged within four main thematic areas: (1) a gap between psychological awareness and low knowledge of systemic comorbidities; (2) psychological stress as the primary disease trigger; (3) an adherence-stress cycle causing biographical disruption; and (4) a collective demand for a permanent nursing referent to overcome systemic barriers. Conclusions: Phototherapy’s clinical efficacy is often undermined by its logistical rigor. Achieving skin clearance is insufficient if biographical and systemic gaps remain. Integrated care models, led by specialized dermatology nurses, are essential to provide clinical navigation and support beyond conventional skin treatment.