Longitudinal study of individuals with high tetraplegia (C1-C4) 14 to 24 years postinjury

Abstract

Individuals with hightetraplegia, C1-C4, are living longer due to improvements in medical and rehabilitation care, as well as technology. It is unclear whether this increased longevity is associated with good subjective quality of life and full participation in family and community living. This study describes the outcomes of a group of 63 individuals with high tetraplegia who were interviewed at three phases: 5.3 ± 2.4 years, 13.1 ± 2.5 years, and 18.9 ± 2.6 years postinjury. The measures included demographics, characteristics of assistance with care, psychosocial variables, and time utilization. The results indicate that this group of individuals with high tetraplegia appeared to be functioning well in most areas of their lives. For those indicators that showed change over time, the SCI itself, not necessarily a high tetraplegic injury, and/or the aging process could account for the change. This study suggests that increases in longevity have provided individuals with high tetraplegia the opportunity to live rich and fulfilled lives. © 2005 Thomas Land Publishers, Inc.