Rationale: It is known that epilepsy has a severe impact in the quality of life of the patients; however, it affects the lives of all family members. The psychosocial repercussions of epilepsy are often of greater significance than the seizures themselves. Methods: This was a prospective study, conducted from January 2005 to December 2005 at the pediatric epilepsy clinic of our University Hospital. Parents were interviewed by one of the authors according to a structured questionnaire about the impact of epilepsy in the life of the siblings of children with epilepsy. Results: One hundred and twenty-seven children, siblings of 78 patients with epilepsy were evaluated. From the 127 siblings of children with epilepsy, 60 were girls and 67 were boys. Ages ranged from 5 to 18 years old (mean = 11.7 years). After the diagnosis of epilepsy, the siblings had only negative feelings toward the disease, mostly sadness and fear. Conclusion: Our data showed that the impact of epilepsy in the lives of siblings of children with epilepsy is much more severe than previously suspected. © 2006 British Epilepsy Association.
Tsuchie, S. Y., Guerreiro, M. M., Chuang, E., Baccin, C. E., & Montenegro, M. A. (2006). What about us?. Siblings of children with epilepsy. Seizure, 15(8), 610–614. https://doi.org/10.1016/j.seizure.2006.08.007