Families of children on the autism spectrum: experience of daily life and impact of parent education

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Abstract

Information and support for families of children on the autism spectrum is limited in south-east Europe. A three-year project, Equity and Social Inclusion Through Positive Parenting (ESIPP), was established to develop and provide parent education (PE) in autism for families in Croatia, Cyprus and North Macedonia. This paper presents findings from Croatia regarding family life and the impact of PE. Data were collected via pre- and post-PE questionnaires and semi-structured interviews. Participants discussed the impact of autism on family life, the difficulty of obtaining a diagnosis, the importance of family support (and varying experience of formal support), common experiences of stigma and social exclusion and concerns for the future. The value and benefit of PE is identified, and recognition of its impact within Croatia has ensured its ongoing provision.

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Stošić, J., Frey Škrinjar, J., & Preece, D. (2020). Families of children on the autism spectrum: experience of daily life and impact of parent education. Support for Learning, 35(2), 205–221. https://doi.org/10.1111/1467-9604.12300

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