Dementia knowledge and caregiver burden among carers of older adults in rural eastern Uganda

Abstract

BACKGROUND: Dementia poses a growing public health challenge in sub-Saharan Africa, where aging populations increase caregiver demands and burden. This study examines links between caregiver dementia knowledge, caregiver burden, and the mental health of older adults in rural Uganda. METHODS: Data from a cross-sectional, door-to-door study included 602 caregiver–older adult pairs. Structured interviews collected demographic and health data. Caregivers completed the Dementia Knowledge Assessment Scale and the Zarit Burden Interview. RESULTS: The prevalence of caregiver burden was 28.9%. Higher dementia knowledge, lower income, caregiver depression, and age were associated with increased caregiver burden. DISCUSSION: Findings suggest that dementia knowledge may not reduce caregiver burden. Interventions targeting mental health for both caregivers and older adults are needed in rural eastern Uganda. HIGHLIGHTS: Higher dementia knowledge and lower income were associated with increased caregiver burden in rural eastern Uganda. Caregiver burden, caregiver depression, and older adult characteristics (female, depression, anxiety, and loneliness) were linked to older adult depression. Caregiver and older adult mental health factors also influenced older adult anxiety and loneliness.