The Needs of Women Treated for Ovarian Cancer: Results From a #gyncsm Twitter Chat

  • Hagan Thomas T
  • Nauth-Shelley K
  • Thompson M
  • et al.
N/ACitations
Citations of this article
21Readers
Mendeley users who have this article in their library.

Abstract

Purpose: Ovarian cancer is the most fatal of all gynecologic cancers, with a high relapse rate regardless of stage. Women treated for ovarian cancer, therefore, likely have supportive care needs that extend well beyond the time frame of first-line therapy. Unfortunately, there is minimal data describing these needs. The purpose of this qualitative study is to understand the supportive care needs of women with ovarian care at the end of treatment. Methods: To better understand the issues faced by women with ovarian cancer, we conducted a public Twitter chat in collaboration with gynecologic cancer social media (#gyncsm). Both quantitative and qualitative analyses were performed. Results: The chat occurred over a 1-hour time frame on Twitter and resulted in more than 300 unique and original tweets from 43 participants during the chat and an additional 60 unique participants following the chat. Survivors and physicians represented 32% and 11% of participants, respectively; caregivers, advocates, and other clinicians represented the remaining participants. Participants noted deep interest in receiving support during survivorship and dissatisfaction with currently available resources. Sentiment analysis showed that participants viewed the support from social media in a positive light and also revealed negative sentiment around the lack of support from health care providers at the end of treatment. Conclusions: Themes derived from the Twitter chat revealed the unique experiences of individuals with ovarian cancer after treatment, including a heightened sense of vulnerability. Understanding these themes represents an opportunity for clinicians to better understand and address the needs of this patient community.

Cite

CITATION STYLE

APA

Hagan Thomas, T., Nauth-Shelley, K., Thompson, M. A., Attai, D. J., Katz, M. S., Graham, D., … Dizon, D. S. (2018). The Needs of Women Treated for Ovarian Cancer: Results From a #gyncsm Twitter Chat. Journal of Patient-Centered Research and Reviews, 5(2), 149–157. https://doi.org/10.17294/2330-0698.1592

Register to see more suggestions

Mendeley helps you to discover research relevant for your work.

Already have an account?

Save time finding and organizing research with Mendeley

Sign up for free