Costs and health-related quality of life of patients with cystic fibrosis and their carers in France

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Abstract

Background: Our goal was to provide data on the economic burden and health-related quality of life (HRQoL) associated with cystic fibrosis (CF) in France. Methods: A retrospective cross-sectional study was carried out on adults and children with CF, who completed an anonymous questionnaire regarding their socio-demographic characteristics, healthcare consumption and presence of a carer. Costs were calculated with a bottom-up approach, and HRQoL was assessed using EQ-5D. Results: 82 adults and 158 children were included. The total average annual cost of CF was €29,746 per patient. Total costs were higher in adults than in children and increased with disease duration. The average utility was lower in adults (0.667 vs. 0.783 in children, p. =. 0.0015). The HRQoL of carers was also affected (0.742 and 0.765 for carers of adults and children with CF, respectively). Conclusions: Our study highlights the burden of CF in terms of costs and decreased HRQoL for both patients and carers.

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Chevreul, K., Berg Brigham, K., Michel, M., & Rault, G. (2015). Costs and health-related quality of life of patients with cystic fibrosis and their carers in France. Journal of Cystic Fibrosis, 14(3), 384–391. https://doi.org/10.1016/j.jcf.2014.11.006

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