‘But, what is a researcher?’ Developing a novel ethics resource to support informed consent with young children

Abstract

Young children are generally unfamiliar with the notion of research, which can generate ethical discomfort when seeking their consent to participate in it. Taking informed consent with young children as a focus, in this viewpoint article we reflect on what it means for young children (aged approximately 3–8 years) to be ‘informed’ in the context of research participation. We then share the process of developing an interdisciplinary, innovative ethics video resource to enhance children’s understanding of research, the researcher role and children’s participation in research. To ensure the resource was understandable and engaging for young children, we drew on existing research literature and other supplementary resources as well as creative storytelling and consultation with children and parents. The animated video, which is freely available online, builds from young children’s own experiences and questions with the aim of better supporting their understandings and upholding their rights through the informed consent process.