Cystic fibrosis (CF) centres can assess the quality of the care they deliver by benchmarking their practices and outcomes against those of other CF centres. This is most easily done using summaries of electronic patient records, such as are generated by patient registries. All centres should assess their compliance with standards of care, as determined by consensus documents and evidence-based medicine, and continually seek out and implement ways to improve their clinical outcomes. This may imply changes to routine centre practice as well as to treatment strategies.
Tiddens, H. A. W. M. (2009). Quality improvement in your CF centre: taking care of care. Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society, 8 Suppl 1. https://doi.org/10.1016/s1569-1993(09)60003-5