Systematic Review of the Quality of Patient Information on the Internet Regarding Inflammatory Bowel Disease Treatments

  • M. L
  • A. B
  • C. R
  • et al.
Citations of this article
Mendeley users who have this article in their library.


Background & Aims: Patients use the Internet as a resource for information about their diseases. A systematic review evaluating the quality of information available for inflammatory bowel disease patients on the Internet regarding treatment options was performed. Methods: Google was used to identify 50 websites on 3 occasions. A data quality score (DQS) (potential score, 0-76) was developed to evaluate the content of websites that scores patient information on indications, efficacy, and side effects of treatment. Other outcome measures were a 5-point global quality score, a drug category quality score, the DISCERN instrument, a reading grade level score, and information about integrity. Results: The median DQS was 22, range 0-74, median global quality score was 2.0, and median Flesch-Kincaid reading grade level was 12.0, range 6.9-13.7. Eight websites achieved a global quality score of 4 or 5. The DQS was highly associated with the global quality score (r = 0.82) and the DISCERN instrument (r = 0.89). There was poor association between the DQS and the rank order in all 3 Google searches. Information on funding source (59%) and date of last update (74%) were often lacking. Conclusions: There is marked variation in the quality of available patient information on websites about the treatment options for Crohn's disease and ulcerative colitis. Few websites provided high quality information. There is a need for high quality accredited websites that provide patient-oriented information on treatment options, and these sites need to be updated regularly. © 2010 AGA Institute.




M., L., A., B., C., R., S., H., D., L., & S.V., van Z. (2010). Systematic Review of the Quality of Patient Information on the Internet Regarding Inflammatory Bowel Disease Treatments. Clinical Gastroenterology and Hepatology. S.V. van Zanten, Division of Gastroenterology, University of Alberta, Edmonton, Canada. E-mail: W.B. Saunders (Independence Square West, Philadelphia PA 19106-3399, United States). Retrieved from

Register to see more suggestions

Mendeley helps you to discover research relevant for your work.

Already have an account?

Save time finding and organizing research with Mendeley

Sign up for free