VISIT-TS version 2: A multimedia tool for population studies on tic disorders [version 1; referees: 1 approved]

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Abstract

Population-based assessment of Tourette syndrome (TS) and other tic disorders produces a paradox. On one hand, ideally diagnosis of tic disorders requires expert observation. In fact, diagnostic criteria for TS explicitly require expert assessment of tics for a definite diagnosis. On the other hand, large-scale population surveys with expert assessment of every subject are impracticable. True, several published studies have successfully used expert assessment to find tic prevalence in a representative population (e.g. all students in a school district). However, extending these studies to larger populations is daunting. We created a multimedia tool to demonstrate tics to a lay audience, discuss their defining and common attributes, and address features that differentiate tics from other movements and vocalizations. A first version was modified to improve clarity and to include a more diverse group in terms of age and ethnicity. The result is a tool intended for epidemiological research. It may also provide additional benefits, such as more representative minority recruitment for other TS studies and increased community awareness of TS.

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APA

Vachon, M. J., Striley, C. W., Gordon, M. R., Schroeder, M. L., Bihun, E. C., Koller, J. M., & Black, K. J. (2016). VISIT-TS version 2: A multimedia tool for population studies on tic disorders [version 1; referees: 1 approved]. F1000Research, 5. https://doi.org/10.12688/F1000RESEARCH.7196.1

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