Data quality at the Cancer Registry of Norway: An overview of comparability, completeness, validity and timeliness

  • Larsen I
  • Småstuen M
  • Johannesen T
 et al. 
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Abstract

Aim: To provide a comprehensive evaluation of the quality of the data collected on both solid and non-solid tumours at the Cancer Registry of Norway (CRN). Methods: Established quantitative and semi-quantitative methods were used to assess comparability, completeness, accuracy and timeliness of data for the period 1953-2005, with special attention to the registration period 2001-2005. Results: The CRN coding and classification system by and large follows international standards, with some further subdivisions of morphology groupings performed in-house. The overall completeness was estimated at 98.8% for the registration period 2001-2005. There remains a variable degree of under-reporting particularly for haematological malignancies (C90-95) and tumours of the central nervous system (C70-72). For the same period, 93.8% of the cases were morphologically verified (site-specific range: 60.0-99.8%). The under-reporting in 2005 due to timely publication is estimated at 2.2% overall, based on the number of cases received at the registry during the following year. Conclusion: This review suggests the routines in place at the CRN yields comparable data that can be considered reasonably accurate, close-to-complete and timely, thereby justifying our policy of the reporting of annual incidence one year after the year of diagnosis. © 2008 Elsevier Ltd. All rights reserved.

Author-supplied keywords

  • Accuracy
  • Cancer Registry
  • Comparability
  • Completeness
  • Data quality
  • Neoplasms
  • Timeliness
  • Validity

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Authors

  • Milada Småstuen

  • Tom Børge Johannesen

  • Frøydis Langmark

  • Donald Maxwell Parkin

  • Freddie Bray

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