Experiences of adult stroke survivors and their parent carers: A qualitative study

  • Jones L
  • Morris R
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Abstract

OBJECTIVE: To explore the experiences of adult stroke survivors and their parent carers.

DESIGN: Qualitative methodology: interpretative phenomenological analysis.

SETTING: Six residential areas across England and south Wales.

PARTICIPANTS: Six adult stroke survivors (aged 27-46), six mothers (aged 59-76) and five fathers (aged 55-76).

METHOD: Semi-structured interviews to explore the relationship and interactions between parent and survivor prior to and after a stroke, with opportunities to explore both positive and negative changes. All interviews were transcribed and analysed by a six step interpretative phenomenological analysis process. Survivors, mothers and fathers were analysed as three separate groups and the results were synthesised.

RESULTS: Identical and interconnected themes emerged from the three groups, permitting synthesis into a single organising framework with four superordinate themes capturing the key issues for all three groups. The four superordinate themes were: 'emotional turmoil'; 'significance of parents'; 'negotiating independence versus dependence' and 'changed relationships'.

CONCLUSIONS: Parents reported adjusting to caring with relative ease. Survivors did not adjust to being cared for with such ease and felt positioned in a child role. Balancing independence and dependence was a challenge for survivors and parents and is considered within a systemic theory framework. Implications for service developments and guidelines are considered.

Author-supplied keywords

  • Stroke
  • carers
  • parents
  • qualitative
  • survivors

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Authors

  • Lisa Jones

  • Reg Morris

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