Improving burden and coping skills in frontotemporal dementia caregivers: A pilot study

  • Mioshi E
  • McKinnon C
  • Savage S
 et al. 
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Caregivers of people with frontotemporal dementia (FTD) show higher levels of burden than do those caring for people with Alzheimer disease.1,2 This almost certainly reflects several factors, including symptoms of the patient, rate of disease progression,3 caregiver depression,3,4 or coping style. Moreover, caregivers often find themselves deprived of specialist care in the community, and most programs, when available, focus on memory problems, which are less relevant in FTD. Despite emergent literature and clinical relevance, no studies, to our knowledge, have explored caregiver interventions to reduce burden and enhance coping skills in FTD. To address this gap, the current study aimed to verify the utility of a specific intervention in FTD caregivers, based on an adapted Canadian program targeting problem solving, reframing, and seeking support.5 Primary outcomes were reduction of caregiver burden and reaction to patient behavior; secondary outcomes were decreasing caregiver depression, anxiety, stress, and changing coping strategy where necessary.

Author-supplied keywords

  • caregiver burden
  • dementia
  • frontotemporal dementia
  • intervention

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  • Eneida Mioshi

  • Colleen McKinnon

  • Sharon Savage

  • Claire M. O'Connor

  • John R. Hodges

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