Sudden unexpected death in epilepsy (SUDEP): A pilot study on truth telling among Italian epileptologists

  • Vegni E
  • Leone D
  • Canevini M
 et al. 
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Abstract

Sudden unexpected death in epilepsy (SUDEP) is a syndrome where a person with epilepsy dies suddenly and no other cause of death is found. The question of informing patients and their families about SUDEP remains a problematic issue. The aim of this study is to explore whether Italian physicians interested in epilepsy believe that they should discuss SUDEP with patients and/or their families. A total of 315 questionnaire were distributed, of which 195 (61.9%) were returned. Seventeen respondents (8.76%) discussed SUDEP with all of their patients, 38 (19.59%) with the majority of patients, 120 (61.85%) with very few of their patients and 15 (7.73%) with none of their patients. No statistical differences among groups were found for gender, professional age (≤ 10 years; ≥ 11 years ≤ 20 years; ≥ 21 years ≤ 30 years; ≥ 31 years) and medical specialty (neurologists vs. others). Open questions offered insights into the physicians' problem of managing the negative emotions of patients/family and why the physicians decided to give information.

Author-supplied keywords

  • Epilepsy
  • Questionnaires
  • SUDEP
  • Truth telling

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Authors

  • Elena Vegni

  • Daniela Leone

  • Maria Paola Canevini

  • Paolo Tinuper

  • Egidio Aldo Moja

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