Transition to adult-oriented health care: Perspectives of youth and adults with complex physical disabilities

  • Young N
  • Barden W
  • Mills W
 et al. 
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Introduction: The transition to adulthood is extremely difficult for individuals with disabilities. We sought to explore the specific issue of transition to adult-oriented health care in a Canadian context. Methods: We conducted semi-structured individual interviews with 15 youth and 15 adults with cerebral palsy, spina bifida, and acquired brain injuries of childhood, and their parents (n = 30). Respondents discussed their health care services, their experience with clinical transition, and contributing factors. We analyzed the transcripts using qualitative methods. Results: All participants identified challenges in transition, including: lack of access to health care; lack of professionals' knowledge; lack of information and uncertainty regarding the transition process. Two solutions were identified: early provision of detailed information and more extensive support throughout the clinical transition process. Discussion: The challenges of clinical transition were universal. More extensive information and support is needed during transition to ensure an efficient move to appropriate adult-oriented health care.

Author-supplied keywords

  • Disability
  • Patient perspectives
  • Qualitative
  • Transition

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  • Nancy L. Young

  • Wendy S. Barden

  • Wendy A. Mills

  • Tricia A. Burke

  • Mary Law

  • Katherine Boydell

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