Neurodevelopmental Status as a Criterion for Solid Organ Transplant Eligibility

Abstract

In this chapter we will review existing policies and laws that speak to whether children with neurodevelopmental disabilities can be considered as candidates for solid organ transplant. We will highlight the differences in policy that exist for different organs (heart, liver, kidney). We will review studies of provider attitudes and the published literature of outcomes of these children. Finally we will perform a normative analysis to consider whether current policies and practices are justified, and offering a framework to assist in determining whether, when, and how consideration of neurodevelopmental status should be used when making decisions about candidacy for solid organ transplantation.