Burden and Sleeping Disorders of Family Caregivers of Hemodialysis Patients with Chronic Kidney Disease-End Stage: A Cross-Sectional Study

Abstract

Background: Chronic illnesses with high level of disability can affect not only the patients but also the main caregiver who supports them. The aim of this study was to investigate the burden and sleep disorders of family caregivers of hemodialysis patients. Methods: This is a cross-sectional study. The sample of the study consisted of 310 family caregivers of hemodialysis patients. The tools used were the Pittsburgh Sleep Quality Index (PSQI) for sleep disorders assessment, the Zarit Burden Interview, and the Center for Epidemiologic Studies-Depression Scale (CES-D) for burden and depression assessment, respectively. Results: The total burden of caregivers was serious at 35.5%, and this rate increased to 64.8% if we added the moderate burden. About 26.7% of caregivers were positive in depressive symptoms and 20% at risk (predisposition) for depression. The factor with the greatest correlation with the overall burden was personal strain (r = 0.952, p < 0.001) followed by the role strain factor (r = 0.901, p < 0.001). About half of the respondents (51.6%) had poor quality of sleep. The factors that were strongly related to the overall degree of sleep quality were the actual sleep duration and daytime dysfunctions. Conclusions: Caregivers of hemodialysis patients face an increased risk for burden and sleep disorders development. Continuous and regular assessment of the caregivers’ quality of life and the provision of psychological support may reduce the burden of caregivers and improve the emotional disorders they face.