Epilepsy, epileptics, the work: conflicting relations

Abstract

Participation in the workplace by people with epilepsy is conditioned by various interrelated issues concerning epilepsy itself, the epileptic individual, and society's implicit cultural codes. In order to analyze how such conflictive participation interferes decisively in the quality of life of people with epilepsy, a survey was conducted with 339 patients at the University Hospital of Universidade Federal Fluminense. Patients answered questionnaires including level of schooling, professional qualifications, employment situation, frequency, type, and duration of seizures, associated phenomena, and prejudice towards epilepsy. We observed that satisfactory management of seizures is decisive for their success at work. All patients with daily seizures and 9.3% of those with weekly seizures had never been employed. We conclude that any intervention in this context must include the implementation of multiprofessional and intersectorial therapeutic programs and legislation to protect epileptic patients' rights in a broad effort at demystification of epilepsy.