50. The development and evaluation of an interactive health communication application to promote self-management in young people diagnosed with juvenile idiopathic arthritis: a pilot study

Abstract

Aims: The aim of this study was to design and evaluate an IHCA in young people with JIA, aged 16 to 25 years, investigating whether an IHCA enhanced young people's condition-specific knowledge, and their self-efficacy to manage their health. Background(s): In parallel with clinical care, it is equally important to support young people with juvenile idiopathic arthritis (JIA) to develop self-efficacy skills, so that they can competently self-manage their health, particularly as they transition into adult health services. Capitalising on the popularity of technology, web-enabled tools represent a novel and effective way of engaging young people with JIA. A Cochrane review of Internet Health Communication Applications (IHCAs) found that IHCAs have a positive effect on self-efficacy, empowering individuals to become more knowledgeable.1 Methods: Young people aged 16 to 25 with a self-reported diagnosis of JIA were recruited to take part via social media. The IHCA was built using Microsoft PowerPoint and the iSpring Suite. Matching anonymous pre- and post-participation questionnaires were used to assess differences in knowledge of JIA and self-efficacy skills. A virtual advisory group of patients, parents and professionals were involved throughout the design and development of the IHCA. Result(s): In total, 23 (79%) young people with JIA completed both preand post-participation questionnaires. Most young people reported that their preferred source of condition-related information was obtained via an internet search engine (83%). Prior to completing the IHCA, only 22% of young people reported that they had an excellent understanding of JIA. After completing the IHCA, there was a significant improvement in young people's understanding of JIA. Similarly, after completing the IHCA, there was a significant improvement in young people's confidence to better self-manage their health. Interestingly, only 30% of young people reported that the information which health professionals provided to them about JIA was adequate, in terms of comprehension and usefulness. Qualitative findings identified three core themes: resource content, practical support and accessibility/functionality. Young people liked the way that information was presented, as well as practical steps they could take to improve their health.