“I didn’t feel normal”: Young Canadian women’s experiences with polycystic ovary syndrome

Abstract

Polycystic ovary syndrome (PCOS), which affects 8 to 13% of reproductive-aged women, is a highly gendered disorder whose symptoms disrupt Western conceptions of femininity. This may be especially debilitating for young women, who are targeted by societal discourses governing how they “should” be. We interviewed 10 young Canadian women, aged 18 to 22, about how PCOS has influenced and/or conflated their conceptions of identity and (ab)normality within the current socio-cultural context. Using reflexive thematic analysis through a critical feminist lens, we present three themes: justifying abnormality, pathologizing the abnormal, and fear of failure in pregnancy. Young women described feeling “weird” and “not normal” as a result of their symptoms and expressed worries about their ability to adhere to gendered expectations. We argue that the blanketing of these desirable states as “normal” has pervasive implications for women’s lives and leaves them feeling defective and/or inadequate, which was further reinforced by implicit, gender-based power dynamics in medical institutions when women sought care. We suggest the need for engagement with discomfort and leveraging PCOS as a unique entryway into an analysis of intersectional issues to capture complexities in lived experience.