Collective patient centeredness and patient involvement through self-help groups

Abstract

Over the last decades, health-related collective mutual aid, such as self-help groups, support groups and patient organizations, has become an important player in Germany’s healthcare system. As autonomous collectives of patients and their relatives in manifold indication areas, they act and organize themselves on a voluntary basis. Increasingly, they have a greater say and are turning into collaborators in the development of the healthcare system. Self-help representatives are involved in committees as patient representatives on all political levels, national as well as federal state and local. In these roles they are also spokespersons for the interests of patients and their relatives. Self-help groups (SHGs) and self-help organizations (SHOs) are forming specific patient collectives that are seeking cooperation with the healthcare system. This article is about different forms and possibilities of inpatient and ambulatory healthcare institutions to achieve collective patient centeredness and patient involvement over and above individual patient centeredness. Furthermore, activities of SHGs and SHOs to promote their integration in healthcare structures are discussed.