How Should Biobanking Be Governed in Low-Resource Settings?

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Abstract

Development of biobanks in Africa raises ethical questions related to particular features of African cancer research contexts, such as underresourced health care and research infrastructures and low-average research literacy. This article describes ethical challenges of informed consent, benefit sharing, and stigmatization and proposes navigating these challenges by developing a comprehensive governance framework to ensure African leadership in biobanking research programs in Africa.

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APA

Yakubu, A., Munung, N. S., & De Vries, J. (2020). How Should Biobanking Be Governed in Low-Resource Settings? AMA Journal of Ethics, 22(2), E156–E163. https://doi.org/10.1001/amajethics.2020.156

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