The COVID-19 pandemic has posed distinctive challenges to adolescents and young adults living with spina bifida, especially those from ethic minority populations. With this public health challenge in mind, developing a customized electronic health record to leverage registry data to promote and quantify COVID-19 vaccination uptake among this population is feasible. We provide a brief description of our activities in customizing an electronic health record to track vaccination uptake among adolescents and young adults with spina bifida (AYASB); and the lessons learned, in hopeful support of those scaling-up vaccination delivery across the globe for AYASB as they transition to adult-centered care. Thus, as providers think globally and act locally, COVID-19 immunization efforts can be implemented while providing culturally appropriate transition policies and services for individuals with neurodevelopmental disabilities.
CITATION STYLE
Castillo, J., Fremion, E., Morrison-Jacobus, M., Bolin, R., Perez, A., Acosta, E., … Castillo, H. (2021). Think globally, act locally: Quality improvement as a catalyst for COVID-19 related care during the transitional years. Journal of Pediatric Rehabilitation Medicine, 14(4), 691–697. https://doi.org/10.3233/PRM-210119
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