UK Renal Registry 19th Annual Report: Introduction

Abstract

Fair processing is a key principle of the Data Protection Act and requires organisations to be clear and open with individuals about how their information will be used. This is particularly important where data are collected without individual patient consent with support under section 251 of the Health and Social Care Act, as is the case for the UK Renal Registry (UKRR). As part of ongoing efforts to communicate its work to patients and clinicians, in 2017 the UKRR worked with its Patient Council to update its information leaflets and posters. It also produced a video animation explaining the varied work of the UKRR (see www.renalreg.org/about-us/) and published a more technical "Strategy on a Page" series (see www.renalreg.org/about-us/strategymission/). The framework used by the Strategy on a Page series arranges activity into three broad areas: Audit, research, improvement and innovation and clinical informatics. The same framework has been adopted here.