PALL-03. I-CoPE: A PILOT STUDY OF AN INNOVATIVE MODEL OF SUPPORTIVE AND PALLIATIVE CARE FOR PATIENTS WITH HIGH GRADE GLIOMA AND THEIR FAMILY CARERS

Abstract

BACKGROUND: There is little evidence to guide supportive care delivery to patients with High Grade Glioma (HGG). An intervention, I‐CoPE, provides Information, Coordination, Preparation and Emotional support for people newly diagnosed HGG and their family carers. Delivered by a cancer care coordinator, I‐CoPE consists of (1) information staged according to illness stage, (2) regular screening for needs with responses instituted, (3) facilitation of information transfer and (4) family carer engagement. AIM: To pilot test acceptability and preliminary effectiveness of I‐CoPE delivered over three transitions in the illness course (following diagnosis, following diagnostic hospitalisation, following radiotherapy), for people newly diagnosed with HGG and their carers. METHODS: I‐CoPe was delivered at the identified transition points, with data collection follow‐ ing transitions at enrolment, 2 weeks and 12 weeks. Outcomes of interest included: acceptability (primary); quality of life [patient (FACT‐Br), carer (CQOLC)]; needs for support [patient (SCNS‐SF34), carer (CNSAT)]; disease‐related information needs (PINQ); and preparedness to care [carer (PCS)] (secondary). Descriptive statistics were used to assess acceptability outcomes. Differences in patient and carer outcomes before and after ICoPE were assessed using repeated measures ANOVA. RESULTS: Thirty two patients (53% male, mean age 60), and 31 carers (42% male) participated. I‐CoPE was highly acceptable: 95% eligible patients enrolled, 27 (88%) contributing data until deterioration/death. Post I‐cope: (1) Patients reported fewer information (p