Needs and Psychosocial Outcomes of Caregivers of Individuals with Multiple Sclerosis in Guadalajara, Mexico

Abstract

Multiple sclerosis (MS) is a chronic, disabling disease that has a major impact on the lives of individuals with MS as well as their families. Little information is available on the needs and psychosocial outcomes of Latin American caregivers of people with MS. The objectives of this study were to 1) outline the needs of Mexican caregivers of individuals with MS and determine the extent to which their needs are met or unmet, 2) describe caregivers' psychosocial functioning, and 3) examine the relationship between caregivers' needs and psychosocial outcomes. Forty-three caregivers (21 parents, 12 spouses, and 10 others) completed the Multiple Sclerosis Needs Assessment tool, Patient Health Questionnaire, Zarit Burden Interview, Satisfaction with Life Scale, and Interpersonal Support Evaluation List–Short Version. Interdependence needs were most commonly reported as unmet by caregivers, whereas self-concept and physical needs were most frequently reported as met. Approximately half of the care-givers reported increased burden and depression, although nearly 75% reported feeling relatively satisfied with their lives. Caregiver physical, role function, and interdependence needs were positively correlated with depression. In addition, physical and interdependence needs were positively correlated with burden. Caregiver physical and role function needs were negatively correlated with self-perceived health status. Moreover, interdependence needs were negatively correlated with satisfaction with life, whereas physical and interdependence needs were negatively correlated with perceived social support. Future interventions should focus on addressing the needs of caregivers of individuals with MS and improving their psychosocial outcomes.