What is participatory epidemiology? A definition

Abstract

Participatory epidemiology is a concept that promotes the active involvement and cooperation of researchers and researched populations. The collaboration may relate to individual sections or to the entire course of an epidemiologic study. Participatory epidemiology comprises the following aspects: a joint definition of research objectives and research questions, the cooperative definition of the population groups under study and their health-related contexts, the selection or development of appropriate survey instruments, and dialogical forms of interpreting the results. Participatory epidemiology aims to create knowledge with practical relevance to all stakeholders.