Maori lived experience of osteoarthritis: A qualitative study guided by Kaupapa Maori principles

Abstract

Introduction: Osteoarthritis adversely affects people's quality of life; however, the effects of osteoarthritis on Maori in New Zealand remain unknown. Aim: To explore the Maori lived experience of osteoarthritis. Methods : A qualitative study guided by Kaupapa Maori principles. Maori adults (≥30 years) with clinical knee or hip osteoarthritis took part in semi-structured interviews that were recorded and transcribed. Thematic analysis and a model of Maori health (Te Whare Tapa Wha, outlining four dimensions of wellbeing (taha tinana-physical; taha hinengaro-mental; taha wairua-spiritual; and taha whanau-family )) were used to analyse data. Results : Seven Maori females aged 44 71 years participated. Physical manifestations of osteoarthritis, namely pain and limited daily activities, affected mental, spiritual and family wellbeing. Participants experienced whakama ( shame ) and frustration. Cultural duties such as attending the marae were impeded, affecting spiritual wellbeing and cultural identity. Participants described drawing on the strength of their ancestors to cope with their impairments. Western medicine was commonly used, although side-effects were prominent and few participants had received information about the condition from health professionals. Both positive and negative experiences of health-care and treatments were reported. Discussion: Osteoarthritis infl icts a substantial burden on the physical, mental, spiritual and family wellbeing of Maori women. Primary care practitioners must consider spiritual and family wellbeing when providing care for Maori with osteoarthritis. Culturally sensitive education for patients and their whanau is needed.