Self-determined and Informed Use of Personal Health Records: Assessment of Attitudes and Learning Requirements Among Older Adults

Abstract

Personal Health Records (PHR) offer the opportunity for improved care for patients. Older adults, who often face a larger number of chronic diseases, could particularly benefit from the use of PHR. However, confident and self-determined use requires a high degree of digital and content-related competence. The object of this paper is to assess the attitudes and experiences of older adults in connection to the PHR and their requirements towards an eLearning system for appropriate PHR use. To answer the research questions, semi-structured interviews with older adults (aged ≥ 65 years) were conducted. A focus group was also set up, consisting of older adults. Sociodemographic data, previous knowledge about the PHR and willingness to use technology were additionally collected using validated and self-developed questionnaires. While previous knowledge about the PHR was relatively low within the study population, general attitudes towards the PHR were mostly positive. The study participants mainly expressed hope for improved care and concerns about possible incomprehensibility of the content. In terms of learning content, information about access rights and data security were the aspects most frequently mentioned. A high demand for a learning platform enabling the target group to use the PHR successfully was evident. Such a platform could facilitate implementation of the PHR and help older adults to actively participate in their healthcare. At the same time, the specific requirements of older adults should be considered during development.