Abstract
Online health communities (OHCs) are spaces where people gather for informational and emotional support around specific medical conditions and concerns. Although OHCs are an active and exciting research area that continuously attracts a wide range of approaches and methodologies, the focus has been mostly on a limited selection of OHCs or medical conditions. At the same time, there are novel challenges that OHCs face, including changes to the medical system resulting from the COVID-19 crisis, increased medical misinformation propagating online, and additional focus on personalized medical advice that is less attainable in traditional medical systems. This workshop will bring together researchers to discuss and produce generalizable lessons about membership, structure, and support in OHCs in the context of these novel changes, generating research agendas for future exploration and design of OHCs.
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Papoutsaki, A., Huh-Yoo, J., Macleod, H., Mamykina, L., Miller, A. D., Yarosh, S., & Epstein, D. A. (2021). The Future of Research on Online Health Communities: Discussing Membership, Structure, and Support. In Proceedings of the ACM Conference on Computer Supported Cooperative Work, CSCW (pp. 352–355). Association for Computing Machinery. https://doi.org/10.1145/3462204.3481721
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