Family quality of life from the perspective of older parents

Abstract

Background: Family quality of life is a relatively new field of study. Research has primarily concentrated on families of children and young adults with intellectual disability (ID). Method: This project explored the concept of family quality of life from the perspective of older parents who had adult children with ID aged 40+. Focus groups, individual interviews and surveys investigated family issues related to maintaining or enhancing family quality of life. Results: Parents reported positive aspects of lifelong caregiving and quality of family life. There were concerns for the health of all family members, the social lives of their adult child, long-term living arrangements and the role of siblings. Conclusion: Current family and service issues that need to be addressed are related to funding and finances, staffing, and the need to adapt to age-related needs. © 2005 Blackwell Publishing Ltd.