The viewpoint of DNA donors on the consent procedure

Abstract

This paper questions the participants' viewpoint in a research in genetic epidemiology on the collection procedure of their consent. Stemming from a qualitative sociological approach through ethnographic observations and interviews (n = 35), it aims at understanding the actual experience of the procedure. Through collected speeches, it emphasizes the existence of contrasted appreciations of the signature procedure of the consent (from positive reactions to attitudes of mistrust). This article identifies the manner in which these appreciations are built. It suggests that the taking into account of these different appreciations and their logics may benefit a co-construction of plans for the constitution of a 'DNA bank' in population. Finally, some modalities are proposed briefly in the conclusion. © 2007 Taylor & Francis.