Satisfaction with social role participation in adults living with chronic conditions: Comparison to a US general population sample

Abstract

Purpose: Health-related quality of life (HRQOL) of adults living with a chronic condition or disease is an important patient-reported outcome. There is a need to better understand the social health dimension of HRQOL among adults living with a chronic condition (with or without physical/mental disability). This study examined self-reported satisfaction with participation in social roles (SPSR) in adults, grouped by different age groups, living with a chronic condition relative to the US general population. Materials and methods: This cross-sectional survey study included a convenience sample of 1,822 community-dwelling adults living with one of four chronic conditions. Participants completed the self-report Patient Reported Outcomes Measurement Information System (PROMIS) Satisfaction with Participation in Social Roles v1.0—Short Form 7a (SPSR-SF). PROMIS SPSR-SF scores were compared with a US general population using normative data collected by PROMIS (n = 2,555). Results: Participants self-reported significantly lower SPSR (M = 45, SD = 8.3) than the US general population (M = 50, SD = 10), t(1821) = −25.65, p > .001. A regression analysis indicated that physical function explained more variance of PROMIS SPSR-SF scores than age. Conclusions: Relative to the PROMIS national sample, adults living with a chronic condition reported lower levels of SPSR. Decreased physical function was associated with lower SPSR.