A medical information commons (MIC) is a networked data environment utilized for research and clinical applications. At three deliberations across the U.S., we engaged 75 adults in two-day facilitated discussions on the ethical and social issues inherent to sharing data with an MIC. Deliberants made recommendations regarding opt-in consent, transparent data policies, public representation on MIC governing boards, and strict data security and privacy protection. Community engagement is critical to earning the public's trust.
CITATION STYLE
Deverka, P. A., Gilmore, D., Richmond, J., Smith, Z., Mangrum, R., Koenig, B. A., … McGuire, A. L. (2019). Hopeful and Concerned: Public Input on Building a Trustworthy Medical Information Commons. Journal of Law, Medicine and Ethics, 47(1), 70–87. https://doi.org/10.1177/1073110519840486
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