Patient-reported outcomes

Abstract

In 2002, the National Institutes of Health (NIH) embarked upon a bold plan called "the NIH Roadmap" to identify and improve impediments to biomedical research in the twenty-first century. Three key areas were identified that would catalyze research discovery: New Pathways to Discovery, Research Teams of the Future, and Re-engineering the Clinical Research Enterprise. The plan to reengineer the clinical research enterprise included the establishment of a multicenter cooperative group referred to as the Patient-Reported Outcomes Measurement Information System (PROMIS). Originally, the PROMIS network included researchers from seven US academic centers. Over time, that number has expanded to include 15 centers.