Perceptions of the impact of the Covid-19 pandemic on the lives of children and adolescents with cystic fibrosis

Abstract

This article describes the impact of the Covid-19 pandemic on the lives of children and adolescents with cystic fibrosis (CF) from the perspective of their parents and guardians. We conducted an exploratory study with 27 parents and guardians of children and adolescents with CF using a questionnaire. Drawing on Minayo, we performed a thematic analysis of the responses to the questionnaires, identifying three core categories: the impacts of the Covid-19 pandemic on the care of children with CF; the impact of social isolation on the lives of patients and their families; and uncertainties and fears generated by the pandemic. The findings suggest that the pandemic aggravated difficulties experienced by the patients, disrupted health care, and caused both physical and mental strain. Teleconsultations avoid the discontinuation of health care. Reliable information can prevent the spread of Covid-19 and mitigate the stressors that generate fear and insecurity. Actions to improve access to information should be developed.