α1-antitrypsin deficiency: A report from the 2nd meeting of the alpha one international registry, Rapallo (Genoa, Italy), 2001

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Abstract

The Alpha One International Registry is a scientific foundation established to comply with a World Health Organization recommendation to develop a multinational registry of α1-antitrypsin deficiency, with the aim of creating a common database of subjects recognised in a standardised way. A commitment of the Alpha One International Registry members, belonging to 15 national registries, is to meet every 2 yrs; in an open scientific conference to provide a scientific and clinical update on the deficiency. The second Alpha One International Registry meeting was held in Rapallo (Genoa, Italy) on September 27th-28th, 2001, and 26 speakers provided an exhaustive overview of all aspects of α1-antitrypsin deficiency, including epidemiology, genetics, biochemistry, associated conditions, established and novel therapeutic options, and markers of efficacy. In the framework of a rare and often under-recognised condition, this meeting is likely to be central to improving understanding and increasing awareness of α1-antitrypsin deficiency.

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Luisetti, M., Miravitlles, M., & Stockley, R. A. (2002). α1-antitrypsin deficiency: A report from the 2nd meeting of the alpha one international registry, Rapallo (Genoa, Italy), 2001. In European Respiratory Journal (Vol. 20, pp. 1050–1056). https://doi.org/10.1183/09031936.02.00302502

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