Family (re)organization in the context of Alzheimer's disease in the elderly: an exploratory and descriptive study

Abstract

Aims: To understand (re)organization of the family of elderly patients suffering from Alzheimer’s disease from the perspective of complexity; to know the perceptions of teachers of health courses that relate to a project to support families/caregivers of Alzheimer patients about the need for family (re)organization; to identify/delineate care strategies that can contribute to the process of family (re)adjustment in coping with the disease. Method: This is an exploratory and descriptive study that uses a qualitative approach. Results: We identify some difficulties, such as unwillingness to accept the disease and the confrontation with the unknown. Among the possibilities, we highlight the discovery of new meanings. Teachers consider Alzheimers as a unique and multidimensional disease, and they suggest strategies such as the interconnection between support networks to assist in family (re)organization and care for the elderly. Conclusion: The disorientation experienced as a result of Alzheimer’s disease is generated by, and is a generator of, continuous family (re) organization.