Unraveling Patient-Preferred Health and Treatment Outcomes in Early Rheumatoid Arthritis: A Longitudinal Qualitative Study

44Citations
Citations of this article
56Readers
Mendeley users who have this article in their library.
Get full text

Abstract

Objective: To unravel the perspective of patients with rheumatoid arthritis (RA) on preferred health and treatment outcomes at 2 time points during the early stage of their disease and treatment. Methods: In a longitudinal, qualitative, explorative study, we individually interviewed 26 patients with early RA (ERA) 4–6 months after the start of initial RA treatment. Fourteen of these participants took part in 1 of 3 focus groups at least 1 year after treatment initiation. Interviews were audiotaped, transcribed verbatim, and analyzed using the constant comparison method. Two patient researchers completed the interdisciplinary research team. Results: Patients with ERA ultimately strive to be normal again, literally and figuratively. Outcome preferences inherent to this urge for normality were related to aspects of disease control, physical aspects, aspects of participation, and mental aspects. Initially, patient outcome preferences in ERA were primarily related to pain relief, medication side effects and burden, and emotional well-being. Patient-preferred outcomes evolved over the ERA disease course, with subtle changes in terminology used by participants and with pain relief staying in the foreground. Conclusion: From a patient perspective, normality is the ultimate outcome to target in ERA. Our study produced knowledge for designing more targeted therapeutic interventions aimed at normalizing patients’ health and life in all its aspects during a crucial phase of RA.

Cite

CITATION STYLE

APA

van der Elst, K., Meyfroidt, S., De Cock, D., De Groef, A., Binnard, E., Moons, P., … Westhovens, R. (2016). Unraveling Patient-Preferred Health and Treatment Outcomes in Early Rheumatoid Arthritis: A Longitudinal Qualitative Study. Arthritis Care and Research, 68(9), 1278–1287. https://doi.org/10.1002/acr.22824

Register to see more suggestions

Mendeley helps you to discover research relevant for your work.

Already have an account?

Save time finding and organizing research with Mendeley

Sign up for free