Secrecy and Responsibility in the Era of an Epidemic

Abstract

A narrative ethnography about a Ugandan woman and her relatives, this novelistic, fine-grained volume shows how global questions of responsibility and inequity travel in family networks and confront people with decisions about life and death. It is a story of existence under extremely challenging conditions, about belonging and marginalization, about the opacity and ambiguity of social relations, and about growing up in a country haunted by violence and civil war only to be later lifted by optimism and devastated anew by the AIDS epidemic. The story draws on long-term fieldwork and letters from the woman who takes centre stage in the story, while at once providing unique and privileged insight into the ethical challenges of a research method that demands personal involvement that is ultimately withdrawn for scholarly analysis