Educating and preparing the childhood cancer survivor for long-term care: A curriculum model for cancer centers

Abstract

As emphasized in various chapters in this manuscript, childhood cancer survivors often have difficulty with the transition from an integrated and supportive child-oriented care model to adult medical care. While there are various programs at institutions across the country and abroad, CHOC Children’s Hospital has compiled a curriculum designed to guide the survivor and their family through the transition from an integrated care model at CHOC to adult-oriented care. In this chapter, we present that curriculum and how that program facilitates the transition not only to adult-focused care outside of the comforts of their familiar Children’s Hospital, but also provides a mechanism for the survivor and their family to appreciate the struggles all have endured during their journey, and hopefully provide a sense of assurance as they embark on the journey into adulthood.