SP0108 Patient Education to Adults with Rheumatic Diseases through the Internet: A Valuable Example

Abstract

Self-management is an important part in the treatment of chronic conditions, such as rheumatism. Interventions to promote self-management behavior are not always used. One of the reasons is the lack of active involvement of the end user in the development process. Also a theoretical underpinning of the intervention itself is often missed. At the Department of Rheumatology and Clinical Rheumatology of the University Medical Center Utrecht, an online self-management training for adults with a rheumatic disease is being developed in close cooperation with the Dutch Arthritis Foundation. People with rheumatism, as patient partner, have a major role in development and research. As theoretical framework, the Medical Research Council [1] is used. An important element in this framework is a needs assessment among the end-users. For this, a qualitative research was recently conducted by Facebook and Concept Mapping. The next step is to build the training. After that, a feasibility and effectiveness study will follow. Learning experiences During this session, the participant will: - gain insights into the different steps we have taken; - learn more about the fundament of the online training; - gain awareness of the importance of involving the patient in development and research; - get a sneak preview of the new online training.